My wife and I have 5 children. Our oldest child is 14 years old and our youngest is 6 years old. Our children are the most important part of our lives and we have been devastated by recent news about our youngest child’s health.

On May 11th, 2018 we took our 6 year-old son to the doctor to have his back examined. He has a large lump on his back and he complained about pain. The doctor ordered an ultrasound.

On May 17th, 2018 we took James to have an ultrasound done on the lump. Later that day the doctor asked us to come back in. The doctor told us that the results of the ultrasound were very concerning and that further tests needed to be done. The report from the examination stated the following: Differential includes but is not limited to rhabdomyo sarcoma and peripheral nerve sheath tumor. This news was devastating. The doctor ordered CT scans.

On May 18th, 2018 we took James for CT scans. That evening the doctor called us and told us that they believe that James has an aggressive tumor that may be cancerous. They told us that a biopsy would be needed in order to find out the nature of tumor. The doctor also told us that the tumor was localized and that it had not spread to any other part of his body. The doctor also told us that the best outcome would be that the tumor is benign and that surgery would be needed to remove the tumor. The worst outcome would be that the tumor is cancerous and that surgery and chemo therapy would be needed.

A biopsy was scheduled for May 24th, 2018 but we were called on May 21st, and asked to come in on May 22nd to meet with specialist Dr. Jones. The biopsy was rescheduled for 2 pm on the same day.

On May 22nd, 2018 Ayida and I took James to the hospital. We had to leave our other 4 children at home because we were going to be at the hospital for the whole day and we could not bring our other children to the hospital for the biopsy. We had a family friend watch our other children while we were at the hospital.

At the hospital we met with specialist Dr. Jones and he told us that he had reviewed all of the imaging that had been done (ultrasound and CT scans). He told us that based upon what he saw that he did not think that it was cancer but that a biopsy would confirm his belief.

The biopsy was conducted in the afternoon and Ayida and I sat nervously in the surgery waiting room. After about an hour and a half the doctor came to the waiting room and walked us in to a small conference room. He told us that the biopsy went well and that his preliminary findings were that the lump on James’ back was not cancerous. This was encouraging news but I was hesitant to accept his preliminary diagnosis. Up to that point we had been told so many different things by so many different people. I needed to have conclusive proof one way or another before I could accept anything. The doctor told us that pathology would have a final report between 3 to 5 business days.

After speaking with the doctor we were taken to a recovery room where James was coming out of general aneststhesia. We were then taken to a separate room where nurses came in to check on him from time to time. The nurses also gave us instructions on how to care for James while his body healed from the surgery.

We did not hear from the hospital for over a week and the waiting process was very difficult for us. On Friday, June 1st, 2018 Ayida called the hospital to see if the results were in. She was able to speak with the doctor’s assistant and was told:

James has been diagnosed with a benign fibro-adipose legion. This is a mass of fibrous, fatty tissue that comes from abnormal blood vessels. This is a rare condition that can be treated with surgery. It is not a tumor. It is not cancer.

Ayida ran up the stairs and came into the room. I was asleep at the time. She woke me up and told me the news. We hugged and were so relieved! Most importantly we know for sure that James does not have cancer!

We will be going back to the hospital on the June 8th for a post biopsy checkup. At that time the doctor will talk to us about treatment options.

July 18th, 2018: James just had a medical checkup at the hospital. The doctor told us that there is no immediate need for surgery and that James’ condition will only need to be monitored for now. This was great news and we feel as if a great weight has been lifted. We are so thankful. No matter what you may be dealing with right now keep the faith and know that everything will work out for the best. We love you.

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38 Replies to “JAMES HEALTH UPDATE ~ HARDSHIP CAN BE THE PATH TO GREATER LOVE AND STRENGTH”

  1. Intuitively I knew that James would be well. I just couldn't see him not being here. I'm very happy to hear that you all are coping with this situation. Eventually it'll feel like it never even happened. Once again good people know good people. I'm more than happy to assist you all in any time of need. I'm a member of a healing circle around the globe. And everyone is truly happy that James and yourselves are doing so well. Our healing prayers are with you and your family. All you have to do is ask. The love for you guys is always there. Warm hugs ❤

  2. Welcome to the "Plug-in"…..She had no business even implying if it was cancer!! That was so unprofessional, insensitive and clearly stepped over her dutiful guidelines as a Pediatrician. She knows that. No telling how many patients and parents she's causing unnecessary anguish. When a specialist walks thru that door before a biopsy they don't imply or assume; they'll stress a biopsy for certainty, then will speak to you directly after the results. I understand the fear and anguish for sure; given what was relayed initially. Love you guys….be well…

  3. Challenges are part of the experience. I KNEW he would be ok and that this would bring you as a family even closer together. Your whole lifestyle is built around being an example of what men and women inspired to be.

    Your character, integrity, honesty and openness keeps me coming back.

    With Infinitive Love for you, SaqaraAlexis

  4. Glad things are looking up for James. Thanks for giving our community an excellent example of allowing all emotions to exist as they did, and leaning on each other. Unfortunately, far too many people blame each other and turn on each other in times of struggle.

  5. Them doctors are the worse. They shouldn't be able to tramatize people the way they do. In 2010 I took my 3week old baby to the ER which was one of the worst days of my families LIFE. long story short, after an autopsy he had a deficiency but before the Doctors knew that (4months later) they had temporarily torn my family apart-and said we (myself or my husband)shook him-shaking baby syndrome, took my other children from us etc…..ALL CAUSE THEY DIAGNOSES WAS WRONG.

  6. This touched me so much and I am so happy you’re sharing. I’ve been off the grid as well and vegan and just now coping with the idea of my youngest son being diagnosed with autism. I break down constantly because it’s daunting and I understand your need for support. You’re so blessed to have one another and it’s wonderful to see you all stick together. I’ve been watching you guys for years and I’m with you now. Much love to you guys, so much.

  7. In general Ido not believe anything any white person says. Not a politician, not a lawyer and certainly not a scientist. Every word they speak needs to be double-check, because they lack the complete ability to understand a black person's body!

    Thanking the Heavens, God, the Ancestors that your child, our beloved James is doing well and that your family was able to survive the storm and come stronger and wiser out of it. Thanks Lenon and Aida for sharing your experience with us. Couldn't you sue for false diagnose?

    Your children are some prodigies, but little James is something special. Please let him know about the doctors mistakes, lack of tactic and comprehension! Now please take care of yourselves, Mommy and Daddy Honor! Much love, peace and prosperity!

  8. happy to see that it all turned out well..what a terrifying experience to go through. Maybe, there's a reason for this? learning and growing together. Life is NOT always about being positive all the time, these negative experiences, despite how awful it is to go through, helps us to grow and evolve.

  9. Yes they always use fear. There's nothing like a parent's love for a child. It's very traumatic. It's a rollercoaster emotionally. As parents we have to be strong and set the tone for the child. I went through it with my daughter for 10yrs. I reflect and have issues with the way the doctors handled things as well, Lenon. I have nothing but compassion for all families dealing with this type of trama. Wether the out come is good or bad it's still a horrible experience. Still in yet you gain prospective, insight and strength. Blessings to you all.

  10. planting bad negative ideas into peoples’ minds without factual information is just not wise in the least.I was told I had a blood clot in my lungs when I didn’t, they read a CT scan wrong. That initiated 5 years of severe health anxiety and panic. They have no spirituality or sense they are doing harm to people’ s psyche by this intense negative drama they seek to implant. I’m so sorry you had to go through this. The process is inhumane and inhuman. That’s why I (like you) stay away from it, when we do have to deal with it it’s good to know there is a level of unconsciousness and insensitivity that is unprecedented. Just integrate, process and learn. Then you can get to forgiveness. I totally hear you. I’m so thrilled your beautiful baby boy is healthy! Many blessings and much love

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