My wife and I have 5 children. Our oldest child is 14 years old and our youngest is 6 years old. Our children are the most important part of our lives and we have been devastated by recent news about our youngest child’s health.
On May 11th, 2018 we took our 6 year-old son to the doctor to have his back examined. He has a large lump on his back and he complained about pain. The doctor ordered an ultrasound.
On May 17th, 2018 we took James to have an ultrasound done on the lump. Later that day the doctor asked us to come back in. The doctor told us that the results of the ultrasound were very concerning and that further tests needed to be done. The report from the examination stated the following: Differential includes but is not limited to rhabdomyo sarcoma and peripheral nerve sheath tumor. This news was devastating. The doctor ordered CT scans.
On May 18th, 2018 we took James for CT scans. That evening the doctor called us and told us that they believe that James has an aggressive tumor that may be cancerous. They told us that a biopsy would be needed in order to find out the nature of tumor. The doctor also told us that the tumor was localized and that it had not spread to any other part of his body. The doctor also told us that the best outcome would be that the tumor is benign and that surgery would be needed to remove the tumor. The worst outcome would be that the tumor is cancerous and that surgery and chemo therapy would be needed.
A biopsy was scheduled for May 24th, 2018 but we were called on May 21st, and asked to come in on May 22nd to meet with specialist Dr. Jones. The biopsy was rescheduled for 2 pm on the same day.
On May 22nd, 2018 Ayida and I took James to the hospital. We had to leave our other 4 children at home because we were going to be at the hospital for the whole day and we could not bring our other children to the hospital for the biopsy. We had a family friend watch our other children while we were at the hospital.
At the hospital we met with specialist Dr. Jones and he told us that he had reviewed all of the imaging that had been done (ultrasound and CT scans). He told us that based upon what he saw that he did not think that it was cancer but that a biopsy would confirm his belief.
The biopsy was conducted in the afternoon and Ayida and I sat nervously in the surgery waiting room. After about an hour and a half the doctor came to the waiting room and walked us in to a small conference room. He told us that the biopsy went well and that his preliminary findings were that the lump on James’ back was not cancerous. This was encouraging news but I was hesitant to accept his preliminary diagnosis. Up to that point we had been told so many different things by so many different people. I needed to have conclusive proof one way or another before I could accept anything. The doctor told us that pathology would have a final report between 3 to 5 business days.
After speaking with the doctor we were taken to a recovery room where James was coming out of general aneststhesia. We were then taken to a separate room where nurses came in to check on him from time to time. The nurses also gave us instructions on how to care for James while his body healed from the surgery.
We did not hear from the hospital for over a week and the waiting process was very difficult for us. On Friday, June 1st, 2018 Ayida called the hospital to see if the results were in. She was able to speak with the doctor’s assistant and was told:
James has been diagnosed with a benign fibro-adipose legion. This is a mass of fibrous, fatty tissue that comes from abnormal blood vessels. This is a rare condition that can be treated with surgery. It is not a tumor. It is not cancer.
Ayida ran up the stairs and came into the room. I was asleep at the time. She woke me up and told me the news. We hugged and were so relieved! Most importantly we know for sure that James does not have cancer!
We will be going back to the hospital on the June 8th for a post biopsy checkup. At that time the doctor will talk to us about treatment options.
July 18th, 2018: James just had a medical checkup at the hospital. The doctor told us that there is no immediate need for surgery and that James’ condition will only need to be monitored for now. This was great news and we feel as if a great weight has been lifted. We are so thankful. No matter what you may be dealing with right now keep the faith and know that everything will work out for the best. We love you.